My hip has been the cause of much worry, sleepless nights and discomfort lately. While it used to feel stable and comfrotable it is now something I question every step with. Its scay to think I could be home alone with Vaughn and fall and her have to see that. I could be carrying laundry down the stairs and fall. I could be out for a run and fall I could be doing anything I want and break my hip. Again. Thats what it feels like. Like at any moment it could give way. So, I went to see my trusted doctor (who feels more like a family memeber than a doctor most days) to see what he thinks we need to do. I will say that while I never want surgery. Ever. I was praying he had a resolution and that if that meant surgery then I would trust that it would be fixed and I could go back to living worry free. This was not the news. :(
The good news is that the cement is holding up great, the metal is intact and in good shape and as far as the prostesis goes- everything looks fabulous. The bad news is
My bone is still thin, waring out and not in good shape. There has been little change in 3 years to the bone structure which is good but the worst news is that there is nothing they can do to strengthen it. He said that my body will destroy the prostesis before it wares out on its own. That it will break before its time to replace it and there is nothing they can do to stop it. He said giving me a surgery to replace it only means that in a year or two the bone reacts the same way and we're in the same boat. If we do that, we risk me eventually losing my leg all together (amputee) because there will be too much prostesis for it to function normally. He says its a strong probablity that this will be the case anyways since we already nearly have a full femur prostetic that eventually, we'll run out of replaceable bone and it will possibly result in an amputation. This makes me want to throw up. He is doing what he can to prevent but couldn't promise anything. I can't be without my leg. I cant.
If we try a bone graft (which we have been discussing for about 12 years now) then my body may very well reject it, get infected and it may not grow into normal bone and could cause more damage structurally to the bone and prostesis causing a whole other slew of problems. He said giving me a bone graft automatically removes about 15 years off my life and he'd rather me live to be 90 with a functioning leg than 50 with an amputee. I tust him. I do. Its just disheartening that there is nothing.they.can.do. Its a waiting game. If/when it breaks we start at square one like last time. They salvage as much as possible and fix what they can trying to save as much natural bone in the process as necessary. He said the hip itself could last another 20 years, but my body wont allow it. For some reason that bone just doesnt like being connected to metal. I dont either, bone, I dont either.
He sat in the room with me for over and hour. He cried, huged me, reassured me that at least its not the risk of a stroke being home alone or a heart attack etc and that we're dealing with a broken bone in reality. He said to live however I want basically, do what I want and get alot of life living done with the hip I have and that this is all because i am here. We could be avoiding all of this if I wouldnt have survived the cancers and if the hip (which at the time was experimental to be done the way it was) had not been a success we wouldnt be worrying about all this anyways.
Still I cried. The whole time. I just get defeated. Sick of dealing with it all the time. The last time I was there he had given me the 2 year release...to come back in 2 years. I had been waiting for that 2 year release for YEARS. He took it back this time. He wants me to come every year for a while. We did dicsover while I was there that I have been CANCER FREE FOR 16 YEARS!! WHOOP. He seemed to think this was more of an exciting thing than I since I have no memory of it but he said he remembers enough for both of us so he was excited. He wrote it in my charts with smily faces and exclaimation marks. :) i also thought it was funny that he wrote in there personal things, like what I've been doing lately- that I have a photo business, that my daughter is 4, single mom etc. Funny that he wants to remember that stuff. Its nice.
My friend shannon went with me so that she could help with Vaughn while I was in the appointment. They visited the library and museum at the hospital and looked at the doll houses. Afterwards we stopped and ate lunch at the mall and V got to ride the famous carrosel. She was a GREAT kid the whole day. I was SO Proud of her. Especially since she was up at 5:30 am getting ready and didnt nap til around 3 pm. Proud mama.
My cup overflows with love for this little sweetie. |